Everyone living with Friedreich’s ataxia (FA) has their own stories to share. This is a place where you can listen to stories about diagnosis, managing FA, and finding the support you’ll need.
FA Talks Podcast Series
Listen to a podcast that gives a voice to those most closely impacted by FA. You’ll hear authentic dialogue from patients, caregivers, and advocacy groups on living with and managing FA.
Check back often for more episodes.
Episode 1: Meet the Cast of FA Talks
This introductory episode of FA Talks welcomes some individuals living with FA and their caregivers as they talk about their experiences with Friedreich’s ataxia. Guest hosted by Kyle Bryant and Sean Baumstark.
Episode 2: Hackathon
People living with Friedreich’s ataxia (FA) sometimes have difficulty with daily activities. This episode dives into the many life hacks that people living with FA and their caregivers have instituted into their daily lives. Guest hosted by Kyle Bryant and Sean Baumstark of the Two Disabled Dudes podcast.
Episode 3: Healthy Conversations
Friedreich’s ataxia (FA) is a rare disease and is often misunderstood by those who are not affected by it. This episode explores the ways to talk about FA with those who may not be familiar with the condition. Guest hosted by Kyle Bryant and Sean Baumstark of the Two Disabled Dudes podcast.
Living with FA Video Series
Watch people who are living with FA talk about how they’ve managed their disease, found emotional support during their FA journey, and developed strong relationships with their doctors.
Managing FA
Emotional Support
The Doctor-Patient Relationship
The Faces Behind FA
Meet the people behind the Living with FA video series.
Find downloadable resources and information about FA.
Download the Let’s Talk FA Brochure for helpful information about talking about FA with the people in your life.
Find out about FA advocacy and support groups.
